In the fast-paced world of medicine, it’s easy for a rheumatologist to focus solely on the clinical aspects of diagnosing and treating arthritis or autoimmune diseases. However, behind every set of lab results or imaging reports is a patient who may be overwhelmed, frightened, and searching for clarity. Understanding the patient’s experience is just as critical as understanding their disease, the science behind our treatments, and the changes that we face every day.
- Patients Forget Most of What You Say
Research shows that 50% of the information shared during a medical visit is forgotten shortly after it’s said. Worse, 25% of what patients remember is inaccurate. This isn’t due to a lack of intelligence or effort—it’s a reflection of the emotional weight of the moment. Hearing terms like “autoimmune disease” or “arthritis” can be intimidating and overwhelming, making it hard for our patients to absorb details.
This underscores the importance of:
– Repetition: Reinforce key points at multiple visits.
– Written Materials: Provide written summaries or trusted online resources. Initially, I built a YouTube channel @rheumatologistoncallfor my patients, and in time, it reached so many patients across the globe. You may refer your patients there.
– Encouraging Questions: Create space for follow-up questions to ensure understanding.
2. Patients Will Turn to Dr. Google
Let’s face it! Before meeting you, patients would have checked their lab reports and looked on Google. When patients leave your office with unanswered questions—or worse, lingering fear—they will again research the internet for answers. While their intention is to educate themselves, this can lead to a lot of misinformation, unnecessary panic, and distrust of medical advice. Some of them will engage in other social media platforms and they will absorb the negative experiences of others.
Instead of discouraging online research, guide your patients toward credible resources. Empower them with knowledge while emphasizing that their care plan is tailored to them rather than the average case they might read about online.
3. Compassion and Empathy Are Non-Negotiable
For many patients, their interaction with you is their only human connection to the healthcare system. They don’t see the complexities of insurance policies, prior authorizations, or pharmaceutical costs—they see you, their doctor. You are the face of the system, and your words, tone, and empathy shape their entire perception of their care.
When patients feel dismissed or rushed, it can deepen their fear and mistrust. Take time to listen, acknowledge their concerns, and offer reassurance. A few minutes of compassionate listening can foster trust and improve adherence to treatment plans. I am fortunate as in my direct rheumatology care practice, I can dictate the time that I spend with my patients, but not all of you might be able to do that in your current traditional practice
4. Patients Are Scared
Hearing words like “autoimmune disease” or “arthritis” can be life-altering. Patients often associate these terms with disability, chronic pain, or a future filled with uncertainty. For newly diagnosed patients, the fear of the unknown can be paralyzing. Imagine that you are being told, you have “lupus”!
To address this:
– Normalize Their Emotions: Let them know it’s okay to feel scared or anxious.
– Offer Hope: Share success stories or advancements in treatment to inspire optimism.
– Educate Gradually: Break down complex concepts over multiple visits to avoid overwhelming them.
5. Education Is as Important as Treatment
Educating patients is not a one-time task—it’s an ongoing process. Patients who understand their condition and treatment plan are more likely to adhere to it and feel empowered. However, education is more than sharing facts; it’s about connecting information to their daily lives.
For example:
– Explain how medications will improve their symptoms and quality of life. Give them real examples from your practice, they love successful stories!
– Highlight the importance of lifestyle changes, such as diet and exercise, in managing their disease.
– Address myths or fears they may have, especially those fueled by misinformation.
6. Your Words Carry Power
Patients often replay your words long after their visit. A dismissive comment can undermine their confidence, while a kind, reassuring statement can motivate them to take charge of their health. Always remember the weight your words carry.
My advice: Treat the Person, Not Just the Disease
I know most of you in my field are great doctors! Make your patients feel that you are not only a rheumatologist but a GREAT rheumatologist! See the person behind the diagnosis, understand their fears, and guide them with empathy and education. Patients don’t just need a doctor—they need a partner who helps them navigate their journey with autoimmune diseases or arthritis.
By educating, empathizing, and empowering, you’re not just treating a condition—you’re transforming lives.
